Tony was finally able to leave the hospital yesterday. He's having a very rare complication called CIPS. It's caused by the immunosuppression drug that he is on. It causes severe nerve pain in his lower legs. They can't pull him off of the immunosuppression drug so we, for now, just have to manage the pain with pain medication until they test his tacro levels on Monday.
We were able to stay with my Aunt Michelle. And Tammy brought Jack and Kevin down to stay with us. (Cody is out of town with my brother and parents). We have watched 3 of our favorite animated movies with them (Emperor's New Groove, Mitchell's vs. the Machines, and Big Hero 6) and we're working on our third puzzle.
Tony's been able to eat some really great food that Michelle has made for us. It's much easier to take 12 pills in the morning when you're eating some delicious crepes. (He has to take 23 pills a day and he's already very sick of all the medication). He's also been able to get some really good sleep. Michelle is letting him use a heating pad to help with his sore legs.
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